MS(SCA,脊椎小腦共濟失調)——Mira
我一直患有一種疾病,這種疾病叫作MS(脊椎神經萎縮)。開始時我只是感到累,活動之後我需要睡覺。每天我會睡12-15個小時,有的時候我會睡一整天。然後,我的身體開始出問題了。現在我的身體時常卡住,我的頭腦連接不到我的身體的某些部分,有的時候是腿,有的時候是脊椎,有的時候是手臂。身體卡住的時候我不能移動,不能站起來,不能使用我的手臂。這個時候我知道發生了什麼,我會去感覺身體是如何發生痙攣的,然後我的頭腦就不能控制這些部分了。
人們一直在尋找治療這種疾病的方法,西方越來越多的人得了這樣的病,但是現在既沒有有效的藥,也沒有治療辦法。我自己也在尋找治療的辦法,我發現能量活力運動可以極大地幫助我,我也發現這與我吃的東西有關,自然的生活,新鮮的空氣,住在大自然裡對我來說是重要的。
通過做能量活動,我對身體和頭腦的信號變得非常敏感。現在當我的身體卡住的時候,我能感覺到能量在身體的哪個點停止流動並且阻礙了我的行動。如果有人把他的手放在那個地方,那個地方就會放鬆下來,慢慢的我的頭腦和身體可以再次連接上。每次這樣之後,我會感到非常累,然後進入深深的睡眠。睡了一覺之後我的精力會恢復,我又能自己行動了。
如果我在荷蘭發生那樣的事情,周圍的人們和醫生會非常害怕,他們會叫一輛救護車把我送去醫院。我沒有能力讓他們不要恐慌,告訴他們只要放一隻手在那個卡住的地方就好。他們會把我當作一個需要被看護的病人,而忘記了他們並不知道怎麼來幫助我。如果有人把我從胳膊底下拉起來,事情會更糟。如果我被他們以那樣的方式來照看,我知道我要在輪椅上終其一生。
我不需要輪椅,Sandesh一直在幫助我。他為我調配食物,教我做能量活動,這讓我對身體的信號變得敏感。現在我能夠離開他獨立行動,我能告訴其他人怎樣來幫助我。他讓我變得強壯和獨立,讓我知道我在生命中所具有的能力,讓我瞭解我的疾病。
我喜歡住在禪生活社區。這裡的人們相互傾聽,互相尊重。我們一起過著自然的生活,每天做能量運動來增進我們的健康,我們種植有機食品等等。在這裡我感覺到安全,我可以行動而不用害怕MS的侵襲。他們能明白我,我可以告訴他們怎樣來幫助我。這裡的生活和食品能夠維護我的健康,在荷蘭我找不到這樣的環境能夠支持我。
原文:
I live with a disease. This disease is called MS, Multiple Sclerosis. At first I only felt tired. Later on my body started to malfunction. Currently my body sometimes goes into seizure. My mind cannot connect with different parts of my body, sometimes the legs, sometimes the spine, sometimes my arms. At such moments I am unable to move.
This sickness is one of sicknesses for which the world is still seeking a cure. There are no medicines, there is no treatment. But in the West it is happening to more and more people.
In Holland, people around me and doctors panic when an attack comes on. They would just call an ambulance.They look upon me as a patient they need to care for, but they forget they do not know how. With this way of taking care I know I will end up in a wheelchair.
Until now Sandesh has always been able to help me. He prescribed me some food supplements and taught me how to do the Energy Resume Exercise that helped me so much. This helped me to become sensitive to the signals of my body. I am now able to tell people how they can help me. If somebody puts a hand on the part with problem, that part of my body relax and slowly my mind and body can connect again. After an attack I will become very tired and fall into a deep sleep. After the sleep I feel refreshed and I can function independently again.
I love to live in Greenfield Health commune. People here learn to respect each other. We live a natural life together. We exercise every day to benefit our health. We grow our own organic food and produce organic tea. I feel that I am safe, and can function without being fear of my attacks. People understand here and I can tell them what to do. The life rhythm here and the food that we eat supports my health. In Holland I was not able to find this support.
I hope one day I can tackle the cause of my disease. If I can start to understand this disease, my experience would be able to help other people.